Patient education
Patient education is a structured, individualized process that helps young people better understand their condition, develop self-management skills, and become more confident and autonomous in their daily lives. Age-appropriate educational resources are available through the QUALIREHAB digital platform.
The patient education pathway
The program is structured around personal assessments and four tailored core modules, designed to meet each patient's specific needs, expectations and goals.
Initial assessment
A dedicated session identifies each participant's needs, expectations, barriers, resources, and personal educational goals.
Tailored educational modules
Educational modules are selected and adapted according to the participant's condition, age, needs, and goals.
Final assessment and synthesis
A final session reviews progress and learning, reinforces key messages, and supports the development of a personalized long-term plan.
Group sessions can also foster peer connection, shared experiences, and mutual support.
The four core modules
Each module addresses a key dimension of the patient's education journey, tailored to their condition, age, and personal goals.
Physical activity promotion
Understanding the benefits of physical activity, exercising safely, overcoming barriers, setting personal goals, and monitoring progress.
Prevention and healthy lifestyle
Building healthy habits around nutrition, hydration, sleep, screen time, and sedentary behavior, while avoiding harmful substances and supporting long-term health.
Disease knowledge and self-management
Understanding the condition and treatments, supporting treatment adherence, recognizing warning signs, knowing when to seek help, and managing specific situations.
Well-being and quality of life
Understanding emotions and managing stress, building self-esteem, strengthening social relationships and communication skills, developing coping strategies, and setting future goals.
Age-adapted educational materials
Educational resources are available through the QUALIREHAB digital platform and tailored to the participant's age, language, condition, and individual needs.
Individualized content
Resources tailored to each participant's needs, condition, age, and educational goals.
Progressive release
Materials can be made available progressively throughout the program, providing relevant information at the appropriate time.
Engagement tracking
The care team can monitor engagement with educational resources and provide additional support when needed.